Since the episode from my other post. Greg has decided that I really need to exercise and lift weights. He has been telling me this forever, but I just ignore him. I don't want to do it. I'm almost always tired, and I feel like I just don't have enough time. I just want to be lazy, plus, in reality, I'm not sure how much it will actually help.

I decided to look online to see if I could find some stretches or something specifically for scleroderma patients. I found this one...

Let's be honest...If I could do that, I wouldn't have any issues. A: I can't get on the floor, and B: there is no way that I would ever be able to lift my legs and balance. NO WAY! Obviously the people who wrote this have absolutely no idea what it's like to have scleroderma.

To get myself "excited" about exercising, I created a chart for Greg and I to mark off what days we exercised, and what we did. I just need smiley face stickers to really make it fun!


I really don't do a whole lot. I walk on the treadmill at a speed of 1.5 mph for 15 minutes. I would so much rather walk outside, but that's really not something I can do by myself. There's always that chance that I will trip, fall, and won't be able to get up.


I also have wrist weights that I use when I walk, and occasionally do some arm lifts. It's hard since I can't lift both arms at the same time very well. Plus, while walking on a treadmill, it could be a disaster waiting to happen. Greg makes me wear the clip so if I do fall, the treadmill will turn off.


I think the most frustrating part of this is that I can't really do what I want to do. I seriously crave going for a 2 mile run outside. I miss it. I miss being able to do ab work. If I were to try to do a situp, well it may take years to happen. I really don't think this will help a whole lot, but at least I'm trying. Maybe soon I'll be able to pick myself up after I make a stupid decision to crawl.

Thursday was an interesting day. It started normal, me taking Greg to school by 8:00, chill at home for an hour, then eat breakfast. As I was finishing breakfast, I accidentally knocked my bowl of cereal on the floor. Thinking I'd be a good wife, I decided I would try to clean it up myself. I've learned that I can get to my knees by sliding off the couch, so I went to the living room and got on my knees.

As I was walking on my knees towards the kitchen, I thought, "This will take forever. Why don't I just crawl?" So I lean forward to put my hands on the ground. Unfortunately, I have very little upper body strength, so instead of catching myself, my head just kept going and hit the ground. As soon as that happened, I said (out loud), "That was stupid Breanne."

I stayed that way for a little while, with my butt in the air, head on the ground before trying to figure out a way to get up. I couldn't push myself into a crawling position, so I flattened myself to the ground. Then I laid there for a while. Then I rolled over so I could try and figure something out. About this time I looked at the clock and it was 9:20. I still had plenty of time to get up, and finish getting ready for work.

Yeah right! That was not smart of me to think. I spent a lot of time thinking about my different options. Now, I didn't have my phone with me. It was blasting One Direction on the kitchen table. I could have army crawled/wiggled my way into the kitchen to see if I could read the top of the table from the ground, but I was going to get myself up all by myself. Instead, I decided to go to our back bathroom where we have a little step going up to the bathroom. I thought that if I could make it back there I could crawl my way up the step and tub.

I army crawled backwards the entire way,  pausing about every 30 seconds so I could rest and catch my breath. My rests were about 5 minutes long, so it took a while to get back there. Once I maneuvered my way into the bathroom and over to the tub, I tried everything I could possibly think of to try to get up. Absolutely NOTHING worked! No matter what way I twisted or turned, I did not have the strength in my arms or legs to push myself up. As I lay there with my head on the step (it's all carpeted, so it was quite comfortable), I thought about just taking a nap. I was so exhausted, I seriously could have. But then I thought, "My co-workers are probably worried that I'm not on time." So I did not nap.

But as I lay there, and crawled my way through the house, I had a lot of time to think, and wish I had a life alert so I could get ahold of someone. I considered going back to the kitchen to get my phone, which did not sound fun at all, so I didn't. Luckily my tablet was just in my bedroom, so if I could make it in there, I could see what I could do.

I first looked at the time... 10:30!! Then I shot my co-workers an email letting them know I was still coming, I'd just be late. Then I considered adding my other co-worker Caleb as a friend on facebook to see if he could come over, since Greg was at work, and I didn't want to bother him. I finally decided to just facebook message Greg and see if he could come and save me. Luckily he was able to, and helped me up.

It was a very strange hour and a half. I had so many weird, random thoughts rolling through my head. I was just grateful that Greg was able to come get me.

When I finally got to my phone, I saw that I had missed two calls from my boss. I sent a text telling them I would be there shortly (Steve had emailed me back saying they were worried, and asked if everything was okay.)

Greg then told me that Danny had called him asking if I was okay and that he was going to come over. At that time Greg was already on his way, so he told Danny not to worry about it. Agh! It was so frustrating, and so embarrassing. I really was just trying to do something a typical housewife does. It was extremely frustrating.

I am grateful that my husband was able to find a way over to get me, and I'm also grateful for concerned co-workers. Danny had apparently left to make he way over when he finally got a hold of Greg. I felt so bad! But appreciate their awareness of me, and willingness to help me. I did let them all know where our secret key is, so if our house is ever burglarized, they're getting the first blame.

Also, Greg said I'm not allowed to get on the floor anymore. So much for trying to be somewhat independent!

I don't know why I was so nervous for this morning, but I was. I woke up at 6:15 so we could get to the hospital by 7. We got there bright and early, checked in, then waited for the nurse to come get me and take me to the cath lab.


The nurse, Rhonda, came and got me and took me back where I had to get undressed and put on the hospital gown. Then I sat on the bed and waited. She asked me a few questions, then tried to get an IV hooked up. She also had to draw some blood. Holy cow. I haven't had a needle hurt me so bad. After digging for a bit she got it enough to draw some blood, but it wasn't in well enough for the IV. One of the other nurses came over and he poked my other arm, which also hurt, but he was able to get it in fairly quickly. With my skin being so tight, and my veins small, it's a little bit harder to do that kind of stuff.


Dr. Saul, the doctor who would be performing the procedure came in and talked with me a little able the procedure. He was very nice and made me feel a little at ease. He said that my echo results were borderline, but sometimes they underestimate or  overestimate the pressure. The right hear cath would get a better reading of the pressures. Once he left, the had me sign the consent form and we were off.

They wheeled me to the room where the procedure would take place, where I was greeted by a few more nurses. They were all super nice and made me feel a little more at ease. The guy nurse talked to me a bit more about what was going to happen, and was just friendly, and funny. He told me about their pre-surgery rituals (slapping the butts of the ones who "scrubbed"), and joked with me about the doctor and how he was like 800 years old, so he'd done this a few times before, and his buns of steel. It was really great seeing people like him do a job he loves.

They transferred me from me bed to the table (that was fun. I love not being able to lift my head and get myself comfortable). Then they had me turn my head to the left so they could prep the insertion site. I don't know why they chose the neck instead of the groin, but it worked. They placed this 'tent' over my face and neck, and I stayed that way for a little while so they could finish with the other prep. There's something about not being able to see what's going on around you, and you hear things like "blade" and "I think I broke that" that can be kind of nerve wracking. But I survived.

Finally Dr. Saul came over and got started. He pinched my neck then inserted yet another needle to numb the area. Once that was over I really didn't feel anything. It was kind of neat because there was a big screen where I could see what he was actually doing. I could see the catheter going around my heart, and I could also feel it when he pushed it in further. It didn't hurt, but was a really weird sensation. Kind of cool to be honest. It's really weird to think that they can get that close to my heart and I didn't feel a thing. After they got the images and readings they need (took maybe 5-10 minutes), they had me lay still so they could remove the cath. The other nurse applied pressure around the insertion for a bit, then bandaged me up, cleaned me up, and that was it.

They wheeled me back to my room where they had me lay there for about 3 hours to make sure there was not any bleeding. I started coughing within the first half hour of being back, which apparently caused a little bleeding, so she kept me a little longer to make sure it was all okay. I really just laid there. I tried to fall asleep, but my head was hurting from my pony tail, and like I said, I can't really lift my head to adjust, so it was a little awkward, but I survived. I got to have like ten warm blankets, which are the absolute best.



Dr. Saul came in shortly after I was done, and let me know that the pressures in my heart are normal, so that's a relief. Once the three hours were up, my nurse called Greg to come get me, and wheeled me out to the car. It was a simple procedure, just time consuming. The IV's were the worst, and the warm blankets the best. Check off another procedure I hope I never have to have again!

So, Monday morning finally rolled around, and my rheumy called me first thing in the morning. He told me that my echo hadn't changed much from last year, but there was still a bit of high pressure in one of my arteries. Because pulmonary arterial hypertension (PAH) is somewhat common, and a concern among scleroderma patients, he suggested that I have a right heart catheterization done. Then we could see if I need to go on medicine to reduce the high pressure, or just keep testing with echos every few months.

PAH is basically high blood pressure in the pulmonary artery, the blood vessel that carries blood from the heart to the lungs.It occurs when most of the very small arteries throughout the lungs narrow, which increases the resistance to blood flow through the lungs, which results in the heart having to work harder.

For a right heart cath they put a catheter in through your femoral artery (or through your neck) to the right side of the heart and passes it into the pulmonary artery so that it can test the pressure. It's weird to me to think about. Kind of crazy where we've gotten with medical sciences these days. I'm a bit nervous for it. Hopefully they can get some answers, and hopefully it goes well. I'll post more once it's done and over. Wish me luck!

Well, I had a big nice post put together and then it got deleted. Hate when that happens. Let's see if I can put it all together again.


I had a rheumy appointment on the 3rd. It was pretty basic. He asked how my stomach was feeling to which I replied fine. I mentioned that I have a spot on my leg that goes numb when I'm trying to sleep at night. It will burn and tingle and just go numb. I hate it. It happens when it gets too cold and when I get too hot. It doesn't make sense. My rheumy said that it sounded like meralgia paresthetica. He said he sees it a lot in overweight people, and tells them to wear looser clothes and lose weight. Since those aren't really options for me, he wasn't exactly sure what to do. It really isn't a big deal. Just another annoyance I have to deal with.That was about it, though.


Then it was off to run some blood tests and get a chest X-ray to check out my lungs (which came back normal.)


Because Scleroderma, and especially the form that I have, can affect the internals, it's important to run tests to check my internal organs every so often. Since our insurance is changing in September and our deductible is going up quite a bit, we also scheduled an echo-cardiogram to check on my heart.


Before I got to that, I had another fall. This time I was in my house at least, but it still made me so mad. I had just gotten done eating and went to set my tray on the table, when Is stubbed my dang toe on the table leg. I tried to recover and ended up going down and hitting the back of my head instead. It hurt really bad, and I had a massive goose egg on the back of my head. It really sucked.

I had to go get something at the Budge, so when we got out of our car, there was a shuttle waiting, so we decided to take a ride so I wouldn't have to walk a ways so soon after hitting my head. It was awesome.



I had my echo done that next Thursday, the 10th. It was super exciting. It was a lot better than the last one. I didn't freeze, and my hips weren't nearly as sore. It was kind of ironic because last time I had an echo done, I fell just a few days before. I don't recommend it. But the echo itself wasn't too bad.



I still haven't heard back on the results. Everything has always been normal, so I just figured that they'd call me if there was something wrong. Well, yesterday when I was at work, I got a call from my rheumy himself. Not one of his nurses. He called me and left a message saying he had the results from the echo and that he'd call me back. I'm probably freaking out over nothing, but I can't help it. I was pretty stressed waiting for him to call me, and he didn't, so I'm still slightly freaking out. It's probably okay and I am just worrying about nothing. All I know is that Monday can't come soon enough.


I finally got to start on my new medicine to help with my GI issues. Apparently I had to sign a consent form, but they took forever to get back to me about the EKG, then I could just not get into the office on time, or they wouldn't be there. It was quite a pain. Finally when I went in for my echo I was able to sign the form and started the new medicine. I don't feel like its as effective as the reglan, but I haven't had any major issues, so I shouldn't complain too much. Because domperidone can do damage to the heart, I had to get another EKG.




Of course I still haven't heard anything from them. For some reason m GI doc doesn't give me results. I guess I'll wait and see what my rheumy has to say about the echo first, then I'll see if I need to worry about the EKG.


I don't have any appointments too soon. My next is with my PCP on August 11. They upped my dose of fluoxetine, because apparently not showing emotion is bad, and showing emotion is worse. So he just wanted to follow up with me there. I have a few concerns that I may address with him. Its just hard to know whats important and whats not. I mean, in reality I could probably find something new to be concerned about each day, but I don't want to be the one patient who calls about every little thing. I guess that's what Google is for. Self-diagnosing is always a good idea, right?

Last weekend was a great experience. It was the Northern Utah: Stepping Out to Cure Scleroderma 5K walk. I posted information about it in this blog post if you''d like to read more about it.

I know I've mentioned this before, but as I'm slowly coming to realize that this disease is something I'm going to have to live with for the rest of my life, I've decided that I'm going to make the best of it and spread as much awareness about it as possible, and if we can raise money for research, I'll definitely do it.

I had looked and looked to see if there was anything going on close to me, and when I found the 5K in Syracuse, UT, I really wanted to do it. I jokingly posted on facebook to see if anyone wanted to join me, and I got some responses like, "I wish I could, but I'd love to donate." Awesome. People are so awesome! Then I saw my mom a few days later and she said that my Aunt Laurel had suggested that we all do it, and get T-shirts and everything. So, we started posting on facebook and really promoting this thing, seeing if people wanted to buy t-shirts, with the proceeds going to the Scleroderma Foundation. The response we got was unbelievable. People I didn't even know were purchasing shirts, and signing up to run/walk for Scleroderma. It was amazing. I think we sold over 100 shirts. Again, people are awesome!

Greg and I woke up super early on Saturday, June 28, to head down to Syracuse. And by early, I mean 4:30 am! But I was so excited, I didn't even care.


When we got there, there really weren't that many people. I saw a few Cokeville people, so I went over to say hi. Then people started showing up. They just kept coming. It was so fun to see people in their "Team Bre" t-shirts. Next year I'm doing bright colored shirts. That way we'll really stand out!

 
I walked, because obviously I can't run, and it was fun. There was a big group of us that walked, and a big group that ran. It was great to see so many people out, and to cheer them on as they crossed the finish line. I was so touched by the people that came. I was hoping to meet some other Scleroderma sufferers, but all of us kind of stayed with our own groups. Next year will be different....it just will be.


I did get to meet one guy who has Scleroderma, and a lady who's mom had it, but has since passed away. The guy was so nice, and was so positive. It was really great meeting him. I'm looking forward to seeing him next year. The lady I met was also super sweet and nice, and is actually from Logan. It as kind of funny because as we were walking (we started first, but slowly got passed and ended up being last!), Greg says, "That's _______. She's one of my 6th graders." Sure enough, it was, and she was there walking in honor of her Grandma, who was the mom of the lady that I met. It's just amazing to see people who have been so affected by this disease, whether themselves, or someone they love. They are so sensitive and empathetic, and it's just wonderful. I've found this lady on Instagram, and I love her comments she leaves. Whether it's things her mom did or ways they had to help her, or just saying that she's thinking of me. I really can't explain the feeling. It's quite amazing. I was so grateful to meet these two wonderful people.

It really was an amazing experience. I wish I were better with words, and putting my thoughts down on paper. Just seeing the support was wonderful. There were a few groups that were walking in memory of loved ones lost, and it just made me so sad, but for them to gather together in support of them and others was just so touching. This disease can be so devastating, but I truly believe it only makes people stronger.

Here are a lot of pictures of the people who came to support me and other Scleroderma sufferers.

Me & the Tyler family. Greg & I have been in their ward for the past 9 years. I have been the Young Women's leader of their three girls, Sarah, Sam, and Abbie. I have watched them grow up and turn into such beautiful young women. I love this family. The fact that they woke up so early to join us was so touching. Thank you Tylers! (And their uncle who I've never met, but came out to run! Thank you!)

Me with Janessa (left) and Jan (right) Moody. Jan was one of my young women leaders many years ago. She is so fun and happy and positive. I have always looked up to her. Thanks for coming out!


This Teichert family. I just love all of them. When I was younger, both my family and theirs would go on family camping trips together. Both families had kids close in age, so we had a LOT of fun, and have made some amazing memories.

Olivia is quite a bit younger than I am, but I love her to death. She is so pretty and happy, and just a great example to me. You have to read her blog. She's so cute!

Coach Teichert....I can't say enough about this man. Not only have I known him as a great father figure (from going on camping trips), but he has been a great coach in both basketball and track. Yes, he pushed me and sometimes I hated him, but in the end, I only gained more and more respect for him. He only wanted me to succeed, and I wish I had listened to him more, and pushed myself more, but I ultimately learned hard work from him. I love Coach Teichert. I appreciate him coming out and running and supporting me. I have to admit, I really wanted to go on the street and yell splits out to him. Grateful for his example, and for the years he put up with me as a player.

While Olivia was a bit younger, Taffy was a bit older than me. I didn't know her really well growing up, but over the past few years, from reading her blog and being friends with her on facebook, I have come to really admire her. She is a hard worker, and a great mother. Plus I've been so touched by her and her husband's example of a loving, respectful, caring marriage. Thanks for your great example Taffy.

Clyda is another great example of a hard working mother. I have always looked up to her, and love her personality. She is a beautiful woman, and I am so blessed from having known her.

Thanks so much Teichert's for coming out to support me!

Coach Toomer & Karla. Coach was my volleyball and track coach. He also taught me the value of hard work. I'm sure I frustrated the heck out of him, and he probably swore quite a bit because of me, but I was blessed to have such a great Coach who pushed me and wanted me to succeed.

His wife, Karla, was one of my Young Women leaders as well. She was a great example, and taught me to be kind a respectful. I also frustrated the heck out of her, I'm sure, as I have a memory of being dropped off about a mile out of town after girls camp....haha. I'll never forget the lesson that she taught me there.

Thank you both for coming out. I appreciate your support. The fact that you were willing to sleep in your car in the Wal-Mart parking lot, and donating the money saved by not staying in a motel, means so much!

These grumpy little stinkers are my adroable niece and nephews. Aidan, Lilli, Alex and Liam. They got up a little too early, and it took quite a bit of convincing to get them in this picture with me, but I love them all so dang much!

Uncle Robert & Aunt Gayle. They are definitely in my top ten of Aunts & Uncles (if I had a list!) Thank you for coming out, and for waking up early! Love you guys.

As I mentioned above, there were some people who donated and bought shirts that I didn't even know. These are two of them. Tammy Plowman (right) is a friend of my mom's, and her mother is on the left. I appreciate the kindness of people who don't even know me for their support.

This is a funny picture to me. We've got Kenny & Andra Petersen on the left, Aubrey Birch is one of my friends from High School, and also Andra's little sister, then Ashbee Petersen Thompson on the far right is my sister-in law, Aubrey's niece, and Andra's daughter. We're all related, haha. But Andra was one of my favorite young women leaders, and she also was the director of our high school musicals. She is so much fun, and her confidence rocks. I have ALWAYS admired her for that. She is such a beautiful lady, inside and out, and I am so grateful that we are family now! :)

Aubrey has been my friend since we were really little. She is always so kind, and happy, and bubbly. I also admired her for her confidence and for just letting things roll off her shoulders. It was rare to see her upset, she just had a great attitude. I love you Aubs!

Ashbee is my newest sister, and it's kind of weird to call her that. (in a good way!) It's still a bit crazy to believe she married my brother, but I also love her so much. Again, her confidence, and her beautiful personality, it's hard to not love her. I have always thought she was such a cute girl, and I'm glad that she is truly part of my family!

Of course, there are my parents. They have been such a great support to me over the years. They did a lot to get ready for this walk, and organized the selling of the t-shirts. I love my parents, and I know I don't show that enough, but I was really grateful that they were there! Love you guys!!

And then there is my Davies family! I was SOOOO grateful to see them all there to support me. We don't get together near enough, so it was fun seeing them.

Mom, Laurel, Luke, Larry, Pat, Hunter, Kathy, Ethan, Emily, Heather, me, Haley, Cassidy & Cassidy's boyfriend (I think! lol)

Then there were the people that weren't able to make it to the walk that still showed their support.
My in-laws are spread out all over. Virginia, Utah, Wyoming, Arizona, and Vegas. I love being married into this family. I love them all, and appreciate their support through this!

Tyson Teichert - Texas - High School friend, and fellow Distance Crew member (also part of the wonderful Teichert family I mentiond above)

Tessa Teichert - Alaska - I love Tessa. She is the happiest, sweetest, cutest girl ever...also part of that family!

Aunt Amanda - Wyoming - Ran 9+ miles the day of the race. Thank you!

Buck Boyer - Utah - Best friend from HS. Married to my friend Aubrey.

Violet Teichert - opposite side of Wyoming - Another wonderful friend, teammate, and Teichert!

I am blessed people! I will share more pictures eventually, but I think this post is long enough. I really REALLY appreciate everyone who showed up to support me. I am already looking foward to next year...SERIOUSLY. I can't wait!

We placed 2nd in raising the most money. We raised over $3000! Next year my goal is $5000. I love the support. Spread the word!!!!!

I'm not going to lie. Part of me is still in denial about this disease. I still often wonder how I could really have such a debilitating disease, and other times I think that it's going to go away, and I'm going to back to 'normal,' whatever that is. As I am slowly learning to accept the fact that I do have this disease, I want to share more and more about it and inform others about it. It's quite amazing to me how many people have never heard of Scleroderma. Let's face it, I didn't know it existed either. I want to really share awareness and help raise money for research in hopes that someday we'll be able to find a cure.

June has been Scleroderma Awareness month, and I did a poor job of spreading the word, but today is World Scleroderma Awareness Day, so I'm making it a priority to not only "rock teal" (the color for Scleroderma), but to also spread awareness via facebook, instagram, and through my blog.

Because, by now, you probably know a little about Scleroderma, I'm going to more share my personal experience with having it. For me it helps to see how others are affected, versus what the medical terminology for the disease is. I will throw in a few definitions that I feel best describe it starting with this one that my sweet friend Chanel posted on Instagram.


I want to start with the negative aspects of this disease first, beginning with what this disease has taken from me.

• My independence. I rely heavily on my husband to help me get ready for the day, bathe, do  my hair, get dressed, cook meals, etc. There are a few things I can do by myself, which I still really try to do alone, but in the end, he's the one I have to credit for me not looking homeless.
• My ability to bend, stretch, reach. This is what makes it hard for me to get ready. My arms to not lift above my head, making putting a shirt on difficult, reaching up to comb my hair difficult, bending over to put on pants, socks, or shoes. I have a hard time getting things out of the cupboard (plates, cups, junk food Greg puts on the highest shelf, etc.) If I drop something, I'm basically out of luck unless someone is around, or I have my grabber thing.
• My strength. I am a wuss. I have a hard time lifting my purse, or a gallon of milk. We have to plan it so that there is always milk that is less than half full in order for me to pour my own milk. I can't pick up my little nieces or nephews, and can't hold them for long periods of time.
• My joints and muscles are stiff, sore, and weak. My elbows are at a permanent bend. I can't straighten them. Opposite of that, my knees have a difficult time bending. It makes kneeling or getting on the ground nearly impossible.
• My skin is tight, discolored, and itchy. ITCHY. We'll leave it at that!
• My hands full functionality. Because of the skin tightening and the joints being affected, my hands are starting to curl up and turn into claws. I have a hard time gripping things or picking things up. Playing the piano is hard, and setting a volleyball would hurt like crazy.
• My digestive system is quite messed up. I have a hard time swallowing and digesting food, often resulting in vomiting or just being sick to my stomach. 
• I cough often, and have a very hard time doing so. 
• I'm tired almost constantly. I don't want to do anything once I get home from work, except sit and do nothing, even though inside I really want to go out and have fun.

Wow, the list could honestly go on and on. Scleroderma affects a person in SO many ways it's incredible (but not in a good way ;) And everyone is SO different. I have a few Sclero-sisters, and while we all have very similar symptoms, some the same, we all have something that one struggles with a lot more than others. It's not fair to any of us, but I guess that's life. It is what it is.

But while the negatives often outweigh the positives, here are some positives I've noticed because of this disease.

• I love having my hair brushed by my husband. It just feels so different when someone else does it.
• People often ask if I've been tanning because of the discoloration of my skin. I wish that was the case!
• The skin on my face is tight enough that I don't break out very often. Occasionally I'll get a zit or two, but I rarely break out.
• The strength of my marriage has increased immensely. We have to rely on each other, at least I have to, but my husband has stuck with me through all of this, and we've been blessed because of it.
• My faith in my Lord and Savior, Jesus Christ has increased. I have to rely on Him to make it through. I don't have an option. I've felt his love in numerous ways, and it has strengthened me so much.
• I have met some amazing friends through Instagram because of this disease. Sclero-Sisters. There are some amazing ladies out there, and I've been blessed to get to know them.
• I am a lot more positive than I used to be. I don't freak out as much as I used to over little things. Sure it could be the Prozac, but it's a blessing nonetheless.
• I've seen some amazing acts of kindness from people. There is still good in this world!

Scleroderma is a very invisible disease. Most people will never know who is struggling with it. It's a hard disease, and quite honestly, it sucks! We need a cure for this disease! We need to spread awareness.